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Susan

My Disability

My name is Susan.  I am 16 years old.  I am a sophomore at New Trier High School.  I have Waardenberg syndrome.  It is something that makes people have a little bit of white hair in the back, eye color changes, hearing loss, and some bad eye sight problems.  I found out about my Waardenberg syndrome 2 years ago during speech.  I read about it in a paper.  Waardenberg syndrome affects my ears and eyes.  I have Waardenberg syndrome because I was born that way.  I feel like it makes me upset because I don’t like being disabled and being disabled bothers me. 

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